Friday, November 11, 2005

You know, they say that God doesn't give you any more than you can handle. I've never had a lot of faith in that idea. I had an in-depth-up close ultrasound today because they like to really study my babies' hearts since Alexis. They told Scott and I today that this baby appears to have the same defects as she did. Definitely tetralogy of Falot, quite likely Pulmonary Atresia, and VSD (ventricular septal defects)
We're waiting to hear when the appointment is for an even more in-depth ultrasound, 3d I guess, so they can see how bad it is, to see if this baby has any more chance of survival than she did. I'll be delivering in CMC rather than URMC now, because of the NICU and the pediatric cardiac specialists there.

I hadn't had any intention of having them tell me the gender, but with all of this, I figured knowing would be a good thing. It's a boy. Donovan Zane LeClair, presently 5lbs 5oz. They also say the due date seems it might be a little later than they thought before, more like 12/23 than the 15th. He'll definitely have to have open heart surgery, and if he makes it, will be facing a life full of further surgeries as he grows.

I don't know how much I'll be around for a while, maybe more, maybe less, maybe not at all, I don't know. I just don't know if I can do this again.

posted by Erin @ 7:04 PM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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