Friday, December 30, 2005

Well, we went to the pediatrician yesterday about Nova's thrush - in the time between my post on the 28th and the appointment on the 29th, it spread to the inside of his top lip. By that time, there was no doubt that it was thrush, so I wasn't feeling so goofy about taking him in. Dr. Erckman wrote the prescription for the Nystatin, but wasn't completely convinced it was thrush.

Maybe I'm just an ass, but, um, HULLO!? A.) It IS thrush (as evidenced by the fact that it's clearing up already, after just 1 day on the Nystatin) and B.) If he doesn't think it's thrush, why would he write the Rx?

While I had Nova in the examining room, Ma had Terra in the waiting room - where she peed her pants twice. I think it was an early case of 'showing out' out of jealousy. She loves the little guy, but yeah, the jealousy that I knew was inevitable but hoped to avoid is showing its ugly little head.

After the pediatrician, we came home, ate lunch, and Scott came home to get us to the cardiologist appointment. Dr. Bensky is nice, and Nova really seems to like him. He took an o2 sat. reading on Nova, and it was a bit lower than it had been in the hospital, but Nova was taking a bottle at the time, which causes the number to be lower. He didn't seem concerned by the drop, and made another appointment for 2 weeks. He'll be seeing him every 2 weeks unless things seem to get worse. When we go back, they'll have consulted with all the various doctors and decided a bit more about exactly what they'll be doing for Nova and when, but Dr. Bensky says that he'll be going back for another heart cath in February to ensure that the collateral vessels haven't gotten any smaller. We had been led to believe that those vessels wouldn't get any smaller, that those vessels couldn't shrink or change, but that he could outgrow their ability to provide adequate oxygenation. It seems like every time we see one of his doctors, we get a different story than before, and to be honest, it's very frustrating. There just shouldn't be a time when I'm unsure of what's going on with Nova or his condition, period. When we go back, I'll have many questions, and I'll be very insistant that they be answered completely.

Aside from that, he seems to be doing very well, gaining weight rather nicely lol, he's up to 8lbs 8.4 ozs, and 21 1/2 inches. That's an inch and a half and nearly two pounds in a little less than a month! And yes, he's 4 weeks old today. A grand 28 days, and doing the things a 28 day old baby should do. You wouldn't think that there would be a lot of difference between a 2 week old and a 4 week old would you? But there is, and since we've only had him home for 2 weeks, it's hard to remember that he's actually a month old and doing things he's supposed to be doing, like spending several hours consecutively awake and alert, or making little baby noises.

It's all going so quickly, too damned quickly.

posted by Erin @ 4:34 PM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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