Friday, January 06, 2006

IntrospectionI am bits and pieces lately, and I wonder if my whole is greater than the sum of these parts. Every little thing spawns some internal dialogue, the tiniest thoughts inspire poetic fragments - but seriously, I'm not crazy enough to talk to myself, and I hate fragments.


congenital heart defect

posted by Erin @ 4:45 PM   0 comments

Name:
Donovan "Nova" LeClair
Location:
Monroe, North Carolina
Bio:
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
View Erin Monahan's Complete Profile

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Our Links:

• Email Us
• Hospital Financial Assistance List (growing daily)

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"Poetic Acceptance"
our website for grieving parents

• The Grief Recovery Site
• The Grief Support Blog
• Team Nova 2007
• Team Nova 2006

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Press Box and Publicity

• Guided by a Star:Union County Weekly 9/29/06, pgs 10 & 14
• A Heart That Must Go On: Charlotte Observer 10/08/06
• On Stage: My speech at The Heart Walk 2006

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Heart Kids

• Brayden (ToF)
• Daniel
• Evan (ToF)
• Inarah (TOF)
• Jacob (TGA)
• Kai (TGA)
• Logan (TGA)
• Mia (TGA)
• Riley (TAPVR)
• Sam (VSD)
• Sammy (HLHS)
• Sophia (ToF)
• The Walsh Family (TGA)

Forever Young

• Alexander
• Anthony
• Bethany
• Colin
• Darius
• Ethan
• Jake
• Samuel
• Severin

Mommy Steps

• Candace Ellis - Darius' Mommy
• Rose DesRochers - Katie's Mommy
• Terri Grabb - Corbin's Mommy

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Heart Links

• HeartMart
• Kid's Health (on CHD's)
• Saving Little Hearts
• CHD Support Group
• Kids with Heart
• Grieving Hearts
• Congenital Heart Defects
• Congenital Heart Information Network
• The Heart Institute for Children
• Heart Center Encyclopedia
• LongQT Organization
• SADS Foundation (Long QT)
• Barth Syndrome
• Aortic Valve Stenosis
• Atrioventricular Canal Defect (AVSD)
• Cardiomyopathy
• Coarctation of the Aorta (COA)
• Double Inlet Left Ventricle
• Down Syndrome Health Issues
• National Associaton for Down Syndrome
• Mayo Clinic: Ebstein's Anomaly
• Hypoplastic Left Heart Syndrome (HLHS)
• Hypoplastic Right Heart Syndrome (HRHS)
• Kawasaki Disease
• Foundation
• National Marfan Foundation
• Patent Foramen Ovale
• Pulmonary Hypertension
• Tetralogy of Fallot (TOF)
• Total Anomalous Pulmonary Venous Return (TAPVR)
• Truncus Arteriosus (TA)
• Transposition of the Great Arteries (TGA, D-TGA)
• Ventricular Septal Defect (VSD)

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