Wednesday, January 11, 2006

Well, so far this has been a hell of a week, and promises to continue to be full and busy. There have been doctor appointments every day this week. Monday was a well-check/weight check. The thrush isn't cleared up yet, but his weight gain and growth is in the 50-75th percentile. He was up to 9 pounds 9 ounces.

Tuesday was our bi-weekly visit to the cardiologist. They weighed him too - up to 9 pounds 13 ounces overnight...
They checked his Oxygen Saturation levels, which is mostly why we go. His numbers have been on a steady decline since we left the hospital, which means the collateral are shrinking. It's the thing we were hoping wouldn't happen, or that at least it wouldn't happen so soon. Dr Bensky was pretty concerned by the trend, and they scheduled his heart cath (originally scheduled for late February) for Friday morning, and want to go ahead with the surgery. We'll know the definite date on Friday afternoon, but most likely will be within the next week or so. It's a sudden change, and not great news. We really wanted to put this off until he was a couple months older. We're sort of in shock over it.

While we were at the cardiologist's office, my ob/gyn called and left a message on the voice mail for me to call back. Looks like surgeons are in a hurry to do surgery this month - my tubal ligation was scheduled for January 26th, but Dr. Sobel moved it up to tomorrow, which meant that today, there were a total of 4 appointments between 1pm and 3pm.

Tomorrow, I'll spend the day in outpatient surgery having my tubes tied. I have to be there by 8, and they figure I'll be on my way home around 2. Friday morning we have to be at CMC by 6am for Nova's heart cath. That'll be an all day affair, and possibly an overnight stay, which will eat up most of Saturday too most likely. Once this catheterization is done they could do the surgery at any time.

I kept saying how easy it was to pretend that we weren't facing the surgery - easy to just not think about it. All of a sudden, it's undeniable, and right around the bend, and I'm just not ready yet.

posted by Erin @ 4:53 PM   0 comments

This page is powered by Blogger. Isn't yours?

Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
View Erin Monahan's Complete Profile

Click Here to Donate

Our Links:

"Poetic Acceptance"
our website for grieving parents

Press Box and Publicity

This Site Has HEART

My site was nominated for Best Charity Blog!

Heart Kids
Forever Young Mommy Steps

Heart Links

Page best when viewed at 1024 x 768

Adult Dating
Visit NCBlogs
Listed on BlogShares