Friday, February 24, 2006

This is the front entrance - a lighted fountain that is really beautiful and my photography skills do it no justice.

so much more swollen today - he's harder to look at today. I don't think you can possibly prepare yourself for how bad a baby can look. The nurses say it's pretty much par for the course, but it's scarey.

I had Scotty take this picture so you got a better idea of all the wires and meds and monitors. See the blue glowy screens on the right side of the picture? Those are medication dispensers - 4 meds in the top one (epinephrine, amiodorone, milidone or something like that, and one more that I KNOW the damn name of and can't think of it right now) and 3 in the bottom one, only I can't even begin to remember all the names of those - it's taken me this long to remember those top ones!) There's another set up just like this right behind my head that you can't see - 3 more meds in it, including the paralyzing agent. OK, above Nova's head is his bear, above the bear's head is ANOTHER medication dispenser. He also gets 2 more medications - viagra once every 4 hours, and one that is given orally.

Also above my head is another medication in a glass bottle, and behind that (you can barely see it) is one of his monitors- there's a total of 3. Plus to the right (out of the picture) is his ventilator, which is a huge machine with its own monitor and network of tubes and things.
And you can also see that there's a picture of Nova hanging up... All the nurses think he's adorable and fat and chunky and cute (they're used to thin sickly looking babies) and they wanted a picture of what he looks like on a normal basis.

posted by Erin @ 10:33 PM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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