Sunday, February 26, 2006

You guys will be able to recognize Scott by his fingers alone soon - He's holding Nova's little hand in almost every picture I take.


Note that he's holding on to the bear... they had to move his IV from his arm to his foot because the vein blew and the fluids weren't going into his vein, they were just pooling up in his arm and causing (even more) swelling there - they've got his arm elevated and propped on his bears.

In this last picture you can really see the amount of swelling that's even in his head. I'll have to put it through paint shop pro and show you what I mean because it's just too hard to describe where it is lol.


posted by Erin @ 12:12 AM   0 comments

Name:
Donovan "Nova" LeClair
Location:
Monroe, North Carolina
Bio:
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
View Erin Monahan's Complete Profile

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Our Links:

• Email Us
• Hospital Financial Assistance List (growing daily)

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"Poetic Acceptance"
our website for grieving parents

• The Grief Recovery Site
• The Grief Support Blog
• Team Nova 2007
• Team Nova 2006

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Press Box and Publicity

• Guided by a Star:Union County Weekly 9/29/06, pgs 10 & 14
• A Heart That Must Go On: Charlotte Observer 10/08/06
• On Stage: My speech at The Heart Walk 2006

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Heart Kids

• Brayden (ToF)
• Daniel
• Evan (ToF)
• Inarah (TOF)
• Jacob (TGA)
• Kai (TGA)
• Logan (TGA)
• Mia (TGA)
• Riley (TAPVR)
• Sam (VSD)
• Sammy (HLHS)
• Sophia (ToF)
• The Walsh Family (TGA)

Forever Young

• Alexander
• Anthony
• Bethany
• Colin
• Darius
• Ethan
• Jake
• Samuel
• Severin

Mommy Steps

• Candace Ellis - Darius' Mommy
• Rose DesRochers - Katie's Mommy
• Terri Grabb - Corbin's Mommy

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Heart Links

• HeartMart
• Kid's Health (on CHD's)
• Saving Little Hearts
• CHD Support Group
• Kids with Heart
• Grieving Hearts
• Congenital Heart Defects
• Congenital Heart Information Network
• The Heart Institute for Children
• Heart Center Encyclopedia
• LongQT Organization
• SADS Foundation (Long QT)
• Barth Syndrome
• Aortic Valve Stenosis
• Atrioventricular Canal Defect (AVSD)
• Cardiomyopathy
• Coarctation of the Aorta (COA)
• Double Inlet Left Ventricle
• Down Syndrome Health Issues
• National Associaton for Down Syndrome
• Mayo Clinic: Ebstein's Anomaly
• Hypoplastic Left Heart Syndrome (HLHS)
• Hypoplastic Right Heart Syndrome (HRHS)
• Kawasaki Disease
• Foundation
• National Marfan Foundation
• Patent Foramen Ovale
• Pulmonary Hypertension
• Tetralogy of Fallot (TOF)
• Total Anomalous Pulmonary Venous Return (TAPVR)
• Truncus Arteriosus (TA)
• Transposition of the Great Arteries (TGA, D-TGA)
• Ventricular Septal Defect (VSD)

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