Thursday, February 16, 2006

So sue me for a day. They aren't doing the surgery on Monday, they're doing it on Tuesday. We have to be there at 5:00 am. He'll be in surgery by 6:30 and it will take somewhere between 10 and 14 hours to do. Afterward, he'll be sedated for at least 4 days, on a ventilator and IV fluids, plus a myriad of medicines. He'll be on the ventilator for something like a week, depending on his ability to breathe on his own. He'll be in the hospital for something like 3 - 4 weeks. We spent the entire day today at the hospital - going over the surgery, doing pre-op bloodwork and testing.
Ever seen an infant get chest X-rays? Well, I didn't take the camera or I'd have taken pictures of it, but here's a picture from the website of the maker of this contraption that resembles a mideivel torture device. (It's called a Pigg-o-Stat... really silly ass name isn't it?) Nova was not amused with being forcefully held in this postiion - not once, but twice, today. No, not amused at all. Not that he was thrilled with the EKG or the needle in his little pudgy hand either. He didn't give a damn about his little pee-bag though, actually, I think he enjoyed the prolonged state of nekkidness.
Fortunately, the helluvaday he had today means that being home, sans needles and testing apparatus, is a welcome change rather than the boring norm, at least for tonight, and he's pretty damned content, which is always a good thing. So, we decided to take a few pictures. There will most likely be many taken over the next few days. We obviously have to document the last few days before the surgery - I'll probably take a shitload of him shirtless. You know, before the scar. The problem with that is that he's so damned content right now, and been poked and prodded so much today that I don't have it in me to mess with him to get him naked. Let the boy be, you know?


posted by Erin @ 6:37 PM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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