Friday, March 17, 2006

OK you all lucked out - no pictures of the colostomy - yet.
There is also no real news to report. He's still pretty drugged up because they say that abdominal incisions are one of the most painful and they don't want him to be in pain so he's loopy right now. Versed, Fentanyl, and the occasional Morphine. I don't like the narcs, but I'd rather that than him be hurting. We already discussed the fact that he'll almost definitely go through withdrawal and methadone seems to be the way they plan to deal with it when it comes time.
You see the sail boat there on his belly? That's the bandage from yesterday's surgery, it pretty well goes from side to side. And below it (covered by the diaper) on his right side is the colostomy.

I was going to post pictures, but the bag was, um, well let's just say "not clean" and leave it at that eh? When I do take a picture I want it to be clean and empty so it shows the colostomy itself, not the bag contents.

Remember the 5 day old I posted about? (did I ever actually post about her? hmm) Well she came into CVRU when she was 5 days old, 3 lbs 3 ozs. Tiny. We got word that she died this week. She'd been moved to NICU the other day. We also found out that another baby died today, anotherone who had been moved to NICU.

Somehow I figured that once they were out of CVRU and moved to NICU that they were pretty well assured that they were going to be ok. Guess I was wrong.

I wish there was something I could do for those parents.

posted by Erin @ 12:01 AM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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