Wednesday, March 22, 2006

A couple of pictures from the last couple of days, since Blogger is being kind enough to allow me to upload them without freezing my whole system.

This picture is from Monday, shortly after the surgery. He's completely zonked.

This is from yesterday (Tuesday) You can see how much more swollen he looks.

And this picture of the colostomy is cuz I'm a little gross ;)

I called the hospital just now because the doctors were at the bedside earlier. Seems Nova got pretty agitated around 5am and they basically had to knock him out to calm him down because when he gets crying really hard his oxygen levels drop.

They also did an echocardiogram that shows that the left branch of his pulmonary artery is definitely too narrow, so they'll have to do that heart cath for sure. That will be next Monday, as far as I know so far.

His white blood count is up, which means there IS an infection somewhere, but damn if I can figure out how when he's on so many antibiotics. They're switching his antibiotics and adding some new ones and stuff to get a head start on that, even though they don't know exactly where the infection is right now.

They plan to remove the last chest tube today, and tomorrow they plan to run a new central line. He's still swollen, but the lasix drip is still running and he's peeing like a champ, and the echocardiogram showed that there are no problems with the vessels in his neck (sometimes those get blocked from the swelling and inactivity, which causes the head to become swollen, but the echo showed that that's not a problem) so that will start to go down soon.

And I think that's all for now.

posted by Erin @ 9:08 AM   2 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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