Tuesday, March 07, 2006

There's a weird thing going on with me. You know how religious I am, I mean, my faith could almost fill a thimble. But today I got some pretty bad news - pneumonia is seriously bad news - but I feel oddly calm about it.

All those warm wishes and positive thoughts you guys are sending must really be doing some good for me too!

Either that, or I've finally lost that last marble... I'm betting on the earlier, rather than the latter, because I actually lost my mind years ago :)

There's a 3 yr old boy in the bed next to Nova now - he arrived yesterday. He's SO big! I mean those are some seriously long legs! Anyway, we talked to the parents while we waited for our visit yesterday, and she told me her son's name and age at that point. Last night I got my daily batch of letters from a support group on Yahoo for parents of heart babies (and adult CHD patients) and Lo and Behold - she is a member of it too! Pretty small world, considering the prevalence of CHD's and how HUGE a Yahoo Group can be (I mean, they're global, know what I mean?) So I followed some links and found out she has a website about him. He's awful cute without all those tubes!

So I took one of the photocuddlers that I sell through poeticacceptance.com, put her son's picture in it, so I can give it to her today. I KNOW they're supposed to be for the charity, but something just told me to do it. About halfway to the hospital, I chicken out because I can't figure out how to give it to her without looking like a total dork. I left the bear in the van, and when Scott realized I had done that, he commenced the ragging.

But honey, you put their son's picture in it and brought it just for them...
I think it's a sweet thing to do...
C'mon let's go get it and you can give it to them when we go back upstairs...
Doofus, I can't believe you left it in the van...
You big boob, just give it to them!

And all I can think is that she's either going to look at me like I'm insane, or be pissed at me for printing out her son's picture. But we go get it, and I argue some more, but he pretty much just told me to shut up and do it. (He, however, wouldn't do it, because it was "girly.")

We got it, went back to the waiting room, and she walks in. Sheepishly, I call her over and explain that I'd found her on the group, followed links to his page, printed out a picture (hope that's ok...) and gave her the bear.

She nearly exploded. She was so tickled. She's a "picture person" she says, and shows me her bracelet that her sister got for her - little silver picture frames
each full of his smiling little face.

"And this one we just got done - you know, I'm sure you do - with the surgery coming up, we wanted professional pictures done, and this is my FAVORITE!" as she turns the bear around to show me the picture I'd chosen.

I'm so glad Scotty gave me hell all day and made me do it.

Thanks Scotty! You made her day. And I won't tell anyone how important it was to you that we give it to her - because we wouldn't want anyone to know what a smushy sweetheart you are! (Or what a doll you've been to me, how absolutely wonderful.) I love you baby.

posted by Erin @ 11:07 PM   2 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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