Thursday, March 02, 2006
Our saga has been speckled with strange repeat occurrences. So many that it's just really strange. Thought I'd list them.
- The most obvious is that Nova is our second child to be born with this (nearly identical) heart defect. In all truth, Alexis' was a notch worse, but the surgery was identical. (Heart defects are actually the most common of all birth defects, but within the category of heart defects, what my children had/have is the rarest.)
- There is of course the bear, who has been with 2 children before he arrived with Nova - all three have overcome serious serious issues and come through them wonderfully.
- We are in the same hospital/ward, and pass the spot where Alexis was every 2 hours for the last week, and will be for the next 2 - 3 weeks.
- We pass the waiting room every two hours - the one where we waited when they were trying to revive her repeatedly that night (8/29/01). It is the same room where I held her afterward and said my goodbyes. (I have not tempted fate by going in there!)
- The same doctor, obviously, performed the surgery.
- The daytime nurse (Candy) was Alexis' nurse the night she died.
- I originally planned to name Nova "Donovan Quinn" but changed his middle name to "Zane" when I read a story at Ninja Poodles about her father Zane... He was obviously a strong tender wonderful man. I was so touched by her post, so impressed with the father she described, that I immediately just knew that was the name I HAD to have for my son.
- After getting permission from the family to use the name Zane, I found out that Nova had a heart defect. Later, I also learned that there was another Zane. Zane (the father) and his wife (Belinda's parents) had a son named Zane as well. He died of a congenital heart defect.
And just to add a bit to the weird coincidences:
Candy, the nurse mentioned above, celebrated her birthday 2 days before Alexis died. Dunno why that strikes me as significant. Probably because I found that out yesterday - the day that Nova was doing so poorly. You see, she was an absolute mess the whole time he was being bagged because they thought it was his lungs for a while, and that, my dears, is just a notch or 2 away from the worst case scenario. It has
to weigh on her mind that, had anything happened to him, she would have been nurse to 2 children of the same parents... Know what I mean?
posted by Erin @ 1:35 AM
Donovan "Nova" LeClair
Monroe, North Carolina
Nova was our second child to be born with congenital heart defects.
We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05,
with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006.
This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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