Monday, May 22, 2006

The Congenital Heart Defect Awareness Quilt Project
was created to promote greater public awareness of Congenital Heart Defects (CHD), while honoring the strength, courage, and commitment of all those born with a CHD and their families.

The Congenital Heart Defect Awareness Quilts are a series of quilts honoring 42 individuals with CHD. The quilts are being constructed of heart blocks, with each block being dedicated to a child or adult effected by Congenital Heart Defects. To have a block dedicated and included in the CHD Awareness Quilts see our block registration page.
I had heard very little about this quilt, certainly not enough. They include any child born with a heart defect, all you have to do is request that your child's name be added. It's free, and you have the choice of making the block yourself (pattern instructions) or, if you (like me) can't sew, they'll have someone make the block for you. You can even request a certain character or theme if you'd like. And, get this, you can even track your block's progress after you request one!

There is strength in numbers, so they say. So if you have a child with, or lost a child to, a congenital heart defect, visit the page. Request that your child's name be added. The more blocks that are added, the more quilts there are, and the bigger the display, the harder it is to ignore.

Plus, let's face it, every parent wants the chance to brag about their children. Add their name, and thousands of people will see it.

For other ways to support the project, visit their Participation page. There are several ways to become involved, and most of them require no money!

I don't know how long it takes to get a quilt block finished, but I'm looking forward to seeing pictures of the ones they make for Alexis and Nova. And my juices are flowing... I'm wondering if there are any CHD events soon, and if I could finagle the right person into hosting a quilt...

Another project perhaps... Another reason to be in touch with The Sanger Clinic, CVRU, Mika... Surely I can work this one out, right?

I think I have to finish my financial aid list before I start another project just yet, but I wanted to share the CHD Awareness Quilt page with all of you.

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posted by Erin @ 9:01 PM   1 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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