Wednesday, June 14, 2006

I received an email through one of my CHD grief support groups this morning. One of the members lost their son in March, and has started Bubba's Bears. Bubba's Bears has attained some news attention here. It seems most people who lose children to CHD tend to feel led to found a charity, raise funds and awareness, create a community of support for other CHD families. Like the story says, "Tiny heart, huge spirit..." or maybe even Broken heart, huge spirit.

Anyway, I'm glad to see their efforts getting some attention. Some of the information in the story regarding CHD are a little misleading (like the statistics for ToF... it makes it seem that CHDs are much rarer than they really are) or downright wrong (We all know that CHDs are more and more likely to be detected in utero) which upsets me, but maybe it's worth it to get attention directed at CHD?

Anyway, have a look, Bubba's Bears might just be something you could make use of. They're cute, and the mission behind it is as pure as it gets. And remember, their son Alexander only just passed away in March, so they're really accomplishing a lot to be so soon.

posted by Erin @ 1:56 PM   0 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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