Saturday, July 29, 2006

I have been having those days lately. The crazy mood swing days. One minute I'm great, and the next I'm bawling. The crazy thing is that many of the teary moments have been good, happy tears.

I cried when I found out the newspaper reporter wanted to do our story. All I could think was how many people would get to know Nova and his story through it. You all know my philosophy that we're here to touch people, you all know how important it has become to me to fulfill that purpose for Nova. You've all watched this happen, the SuperNova Phenomenon.

Well, it continues. And it continues to amaze me. Nova is still doing good things, touching people's lives, and making a difference in this world.

See, I emailed the AHA representative that I've been dealing with since I joined the Heart Walk. I wanted to let her know that they intended to have cameras and such there with us the day of the walk. I knew that she'd been doing some much appreciated (and completely unsolicited) networking for me, telling other people about Team Nova, using his story at Team Leader meetings, letting other CHD families know about Team Nova when she spoke with them. I wanted to thank her for that, and ask her to please keep doing it, because I want this story to be a way to increase awareness in our area, and one way I'd like to do that is for there to be a picture in the paper of a large group of CHD participants all together at the Heart Walk. Who better to help me accomplish that than the rep that talks with all new participants? Especially when she's already made it so clear that she's so willing to do that, all on her own!

Well, she of course, because she's an absolute doll, agreed to do exactly that, and shared another story with me... One of the women who was at the Heart Walk Kickoff that we attended asked her specifically to share our story with her team members. She's really been wonderful to us, and I hug her every time I see her. I just love her to bits.

Well, today when she received my letter and found out about the newspaper story, she forwarded it to the media director for the AHA, who proceeded to call me and ask if I'd be interested in "other types of media coverage." As in television. She wanted to know if I'd be interested in doing an interview with a television station!

Of course I'd be interested!

You see what I mean about the SuperNova Phenomenon? I didn't approach anyone for publicity - this is all just part of Nova's presence. He's been such an inspiration, made so much of a difference already, touched so many lives and made such an impact, and I claim absolutely no responsibility, it's all just unfolded in front of me like magic.

His story, his beautiful little spirit has facilitated so much awareness, and so many opportunities.

And so yes, I've smiled and laughed, and I've smiled and cried, and I've just all-out bawled. I am amazed by these developments, overjoyed to be a part of all of this, unbelievably blessed to have had him in my life, and heartbroken to know that I lost such an awesome, powerful little soul.

Losing him left a gaping hole, and that hole gets bigger and bigger as I realize what he's still doing even after he's gone and what a force he'd have been if he'd lived, but by the same token, he's filling that hole up with all that his story is accomplishing.

posted by Erin @ 12:15 AM   2 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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