Thursday, August 17, 2006
So it's been rough lately, and that's an understatement. Today though, has been surprisingly OK, considering that Alexis would have been 5 today. OK, not great, but doable.
- There is a woman named Kim who has a 13 yr old son who was born with a CHD who joined Team Nova, she is the one who contacted The Charlotte Observer about doing the story that's presently being done. She emailed me yesterday asking me to call her, so I did, and it looks like she's making some huge strides as far as sponsorship goes. She's a go-getter! I'll know more next week. Keep your fingers crossed for me/her!?
- She also told me about a story in the paper yesterday (or the day before?) about The Sanger Clinic. Dr. Stern and other doctors and staff volunteered their time and energy to screen a group of high school athletes to make sure there were no undetected heart problems with these kids. You know, I've posted several stories and links about kids that have died recently of undetected CHD. These docs volunteered to ensure that all these kids were heart healthy - for free. That's the Sanger Clinic docs for you. Awesome.
- So I went to read the story at Charlotte.com, and saw that I could run an ad for $9.95, with a picture, for 14 days, with the option of two free renewals. Yup, I'm so there. However, there was a 500 character limit. Pruning my blurb to 500 characters was so hard. I hope there's a lot of response from it. If there's NO response, I hope that it at least gets read a lot, for awareness' sake.
- The phone rang this morning. It was the media director from the AHA. It looks like our story will be part of the motivational speech given just before the Heartwalk starts on the 16th. We'll even get to be on stage in front of the masses. How's that for awareness raising? God help them if they let me near the mic, my brain is writing a speech in the background already.
- She also said that she expects to hear back from the other media outlets sometime next week. Awareness, awareness, awareness! Come onnnnnn awareness! I'll be thrilled to be the spokesperson for CHD awareness for any of them that are willing to listen!
- Also, I got to spend nearly an hour doing a phone interview for the Observer story, which means that on Alexis' birthday, I had the opportunity to talk quite a bit about Alexis. This is a good thing. Hard, emotional, and good.
And for future reference, in the event that someone close to you loses someone they love, particularly a child, please understand that they want
to talk about that person, and don't make it a taboo subject. I spent many years feeling like I wasn't supposed to talk about Alexis, and this year I've been able to talk so freely about her to so many people, and I can't tell you how wonderful it feels to talk about my baby girl.
posted by Erin @ 2:43 PM
Donovan "Nova" LeClair
Monroe, North Carolina
Nova was our second child to be born with congenital heart defects.
We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05,
with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006.
This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
View Erin Monahan's Complete ProfileClick Here to Donate
"Poetic Acceptance"our website for grieving parents