Monday, September 25, 2006

I got this in my email this morning. It is Nova's block in the CHD Quilt. They're fixing the death date as we speak, because as you can see, the year is wrong, but they responded immediately when I pointed that out, and I had visions of them typing email with one hand and pulling stitches with the other. It's such a wonderful project, and so big. There are, according to the website, 37 finished quilts, and 4 more that are unfinished, and apparently enough blocks made to constitute 45 quilts. There are 42 CHD children honored on each quilt. That's 1890 children, and many many more whose blocks are not yet made, including Alexis. I'm sure seeing all the quilts assembled in one place is a real statement to just how many children and families are effected by CHD, and that's such a small sampling of the true number. They're constantly working to catch up with the requests they have, and getting more and more requests all the time.

I hope some day they get done.

posted by Erin @ 11:20 AM   2 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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