Tuesday, August 14, 2007

I know this is Nova's blog, but we're coming up on what would be Alexis' 6th birthday, and her death date shortly after, and I suppose my focus changes as we go...

I have not been very good at keeping up here at Nova's heart. Rarely a new blog post. I honestly don't know what to say anymore. I don't want to post over and over about the heart walk and seem obnoxious, and I really hate sounding like all I do is grieve...

I hope that all of your little ones are doing well. I think of them often, I make my rounds to read your posts about once a month... but mostly, I feel like I don't belong, like a reminder of what COULD happen... as parents of heart babies, I figure you all think of that more than you should ever have to, without me popping up.

Did I post bout the card from Nova's nurses? It was so beautiful to hear from them, to know they still think of us. I only wish I knew how to tell them just how much it means to us.

posted by Erin @ 11:04 PM   2 comments

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Donovan "Nova" LeClair

Monroe, North Carolina
Nova was our second child to be born with congenital heart defects. We lost our daughter at 12 days after open heart surgery in 2001. Nova was born 12/2/05, with Pulmonary Atresia with VSD. He lived 6 weeks after surgery, and passed away on April 6th, 2006. This blog is his story, and the on-going story of how our family is dealing with the loss of our beautiful boy.
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