Sunday, July 01, 2007
Rosie O has a blog. I love her, and her blog, and her poetry, and her photos...
You can ask Rosie questions, and she comes through and answers selected ones. She gets so many in a day she can't answer them all. I asked her a question today. I've asked it before. I asked for her support in the Heart Walk. Who knows if she has even read mine. Seriously, the volume is staggering.
at 12:09, I asked Rosie question #1304:
even if you don't donate, please post this, so others can? https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=211173&supId=160575062
She's big on children's charities. But the AHA isn't really a children's charity now is it. I hope she posts it, or that I get some sort of response. I doubt I will.
Labels: American Heart Association, Charity, CHD, Congenital Heart Defects
posted by Erin @
12:17 PM

Tuesday, June 19, 2007
Last year after Nova died, someone told me about the
CHD Awareness Quilt(s). These are quilts (40+) that are comprised of seperate blocks, each designed for a CHD child, living or passed. Of course as soon as I heard of it, I requested blocks for both Nova and Alexis. In October, I received
a picture of Nova's block. As you can see (if you click) they customize each block for the child it's meant to honor. I requested stars for Nova's, for obvious reasons - and the block is just beautiful.
Today, I received Alexis' block. Again. it's customized just for her. Alexis was 12 days old when she died, and at her funeral, we placed 12 pink roses on her casket... 1 for each day she lived. So her block has pink roses on it.

Nova's block has been waiting for 8 months to be added to a quilt - waiting for Alexis' block to be finished so that they can be put into the same quilt. Now that hers is done, they can be incorporated into a quilt...
I can't wait until they are. The quilts are often displayed at CHD awarenes/fund raiser events around the country, and I'm hoping that we will, someday, be able to see our babies together.
Labels: Alexis, Awareness, CHD, CHD Quilt, Congenital Heart Defects
posted by Erin @
3:43 PM

Friday, June 15, 2007
It's time for Heart Walk 2007!
In less than a month, we will be commemorating the one year anniversary of Nova's death, and so it's time to kick off our efforts for this year's Walk.
Once again, we're working with the American Heart Association to raise funds and Awareness in the battle against Congenital Heart Defects. If you're receiving this email from me, most likely, you know our story, and how we've lost 2 of our children in 5 years to the effects of Congenital Heart Defects.
Nearly 40,000 babies have been born with CHD since you last heard from me about last year's Heart Walk, and nearly 4000 have died as a result. We want to honor Alexis' and Nova's memories by doing our part in helping future parents avoid experiencing the devastating loss of a child.
Please help us battle the #1 birth defect, and the leading cause of defect-related infant death by making a donation of $25, $50 or more.
Thank you so much for your support!
Erin and Scott
(in loving memory of Alexis and Nova LeClair)
Follow This Link to visit my personal web page and help me in my efforts to support American Heart Association - Charlotte, NC
Labels: Alexis, American Heart Association, Awareness, CHD, Congenital Heart Defects, Fundraising, Heart Walk, Nova
posted by Erin @
1:19 AM

